I am amazed that it is almost 4 p.m. and I have just heard from the doctors...talk about frustration. I am even more frustrated that I don't have too much to report. Dr. Duke, the ENT, called to say that the CT scan showed an 8 mm dense mass, the size of an english pea. It was not a lymph node (which he would have advised us to watch), instead it is a mass of some sort that he is still not sure what it exactly is. He is scheduling her for surgery within the next two weeks to have it removed. He feels that it is probably a tangled mass of blood vessels/ hymangeoma or dermoid cyst. I said," so I don't need to be concerned it's nothing to worry about. He hesitated and said, "well, I am concerned enough to put her to sleep and remove it". So I guess I just feel overwhelmed at the thought of surgery. I knew we would remove it after she turned a year, but I wasn't prepared for it to be so soon. Joe and I are so thankful that at this point no signs are leading to cancer or anything "frightening" as Dr. Duke said. After the surgery, they will send the mass off to the pathologist and we will go from there. I did talk to our pediatrician and he assured me that he thinks after the surgery, we can put all this behind us...meaning it will all be over. Let's pray so! Oh, and the EEG was normal!
Thank you for all your prayers. Please continue to lift us up.
skip to main |
skip to sidebar
About Me
- Susie
- The Lord took me overseas after college where I happened to meet my future husband! Joe and I were married in May 2003. A little over two years later we welcomed our first child, Noah. 20 months later, Madeline arrived...21 months after that Sadie made us a family of five! Sadie was dianosed with Epilepsy in September 2011. For the past 18 months we have searched for the answer that is causing her significant developmental delays. We were told in September 2012 that she has a rare form of epilepsy called Atypical Rolandic Epilepsy that has been untreatable with medicine. We have found ourselves in the role of special needs parents to our precious baby girl. We were unprepared for this road. It has been a hard one, but one that we feel God has given us. On the good days, it feels like a privilege. On the bad days, we choose by faith to believe that the Lord is good and in control.
Big Brother Noah
Big Sister Maddie
Baby Sister Sadie
Some of Sadie's Journey
This is Real Life!
Blog Friends
- Ben and Jennie
- Jeff and Rachel
- The Akers'
- The Bensons
- The Burgess'
- The Chustzs
- The Collins
- The Dennis'
- The Eatons
- The Eatons
- The Greers
- The Haraways
- The Kennedys
- The Kiefers
- The Kitchells
- The Laughlins
- The Lawlers
- The Livelys
- The Lyons
- The Other Lovekamps
- The Pattons
- The Peltons
- The Phillilps
- The Pooles
- The Primos
- The Rutherfords
- The Salters
- The Senters
- The Sheheanes
- The Sprayberrys
- The Warrens
- The Warrens in EA
- The Whites
- The Willis'
14 comments:
Praise the Lord!!!! I am so glad that all things look to be ok! Will continue to pray for the upcoming surgery! Love you!
I'm glad things look okay for now but sorry she will have to have surgery so soon! I totally know how hard that is!!! I'll keep praying!
Found your blog! We'll be praying and will rejoice with you when this is behind you!
that's wonderful news, Susie! I have been checking all day waiting on an update!! Thanks! We'll be praying for a successful, uneventful surgery!!
love,
angie
Praise God from Whom ALL blessings flow.....love you, sweet friend!! Am still sending up prayers!:)
Thanks for the update. We'll continue to pray. :)
I know it's got to be scary to think about her having to go under again and so soon. y'all are continually in my prayers.
Steven and I are praying for ya'll too! Love ya'll!
Praying for you and thinking of you this week.
love,
Ansley
Praise God.
Hey Susie,
I've been keeping up with your blog and I just wanted you to know that I am praying for you and your sweet little one. I'm sure the uncertainty is frightening but I'm thankful that at this point things look okay (except surgery). I will continue to pray for all of you during this time.
so happy to see that things are looking ok as far as the cyst, but so very sorry that she will have to have surgery. i have added you to my blog prayer list.
still praying my sweet friend!! love love!
Susie,
Just found out about all this. I have been out of the blog world for awhile. I will definitely be praying for sweet Sadie and all of you! I read your post about God being in the details - isn't it amazing all the tiny graces He provides during the midst of a trial, as if he is just reminding you that He cares, that He is there....
Post a Comment