We go in today for another EEG sleep study. We are scheduled for 3 nights at the hospital. This came about from discovering that Sadie is having seizures while sleeping. This has been happening for the past 3 weeks. The only reason I found out was because I was sleeping with her one night. We have a strong feeling that she has been seizing in the night for some time. This would explain why she wakes up most nights. The type of epilepsy she was diagnosed with in September is in fact night seizures. But because she was on seizure medicine, we assumed she would not be having any seizures, especially since we were unaware of previous seizures. Of course, we could be wrong...but this study this week will determine (LORD WILLING) the answer.
We are honestly dreading this procedure. It was dreadful getting all the leads (20- 30 leads glued on her head...did I mention she has sensory issues!) in September and then keeping her occupied in a hospital room for 24 hrs. much less a possible 72 hr. ordeal.
We would appreciate your prayers for this as well.
- Mainly, that the doctors would have wisdom to determine what is going on
-that we would get a wireless room (there are only 2 on the unit). This would allow us to at least leave the room and walk the halls
-that Sadie would have her seizures so the EEG would capture it
-rest for us in the midst of poor sleeping conditions
-possible sedation for Sadie while the leads are attached
Our Church has been wonderful and meals are all set up for us. Joe's parents have Noah and Madeline for the week. I will do my best to keep this updated. We covet your prayers for our family. The verse that keeps coming to mind is Isaiah 26: 3-4 "You will keep in perfect peace him whose mind is steadfast, because he trusts in You. Trust in the Lord forever, for the Lord, is the Rock eternal".
2 comments:
acPraying Susie. I can only imagine how difficult all of this must be. Thanks for sharing.
Susie, I'm praying for you and Joe and sweet Sadie. I wish I could give you a hug right now! Love you girl!
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