The Lockdown Continues

Oh where to begin! The night did not go as hoped for. Sadie did sleep great after we waited for over an hour for her meds...this being 9:00! Then as soon as she fell asleep it seems like everyone must come by to poke this poor baby! It baffles me the way hospitals run. She finally sleeps the door knocks, lights flip on and in comes a tech to insert gel/lotion to the EEG leads on her head!

At 3:30 am Sadie kept crying and squirming, so I called for the nurse to check her temp. It was 99.9 (not a fever for them) The nurse aid discouraged the Tylenol so we continued to lay there for two hours of the same crying and irritability. I called back for the nurse, her temp was now 101! She was given the Tylenol and then proceeded to vomit a few minutes later! In comes the clean up crew, change of clothes, disconnecting and reconnecting wires, suppository, re wrap the IV hand, chest X-ray, respiratory panel which involved a lovely nose swab, more gel on the leads, Dr. Brad popped in, bfast came and went and here we are! All with no seizures:(

Joe and I both feel discouraged that this cold she has is hampering her experience here. It feels like how did we come all this way for her to get sick and still have no seizures! Dr. Brad reassured me that it was not damaging her EEG results and in fact sick kids will seize more. So that made me feel so much better. Sadie will not get any of her meds today and that might help induce seizures.

I heard this song this morning and it always encourages me.
It is by JJ Heller, Your Hands...
"I have unanswered prayers and I have trouble that I wish wasn't there.
And I have asked a thousand ways that You would take my pain away.
I am trying to understand How to walk this weary land
Make straight the paths that crooked lie, oh Lord, before these feet of mine.
When my world is shaking, heaven stands.
When my heart is breaking, I never leave your hands.
When you walked upon the earth, You healed the broken, lost, and hurt.
I know you hate to see me cry. One day you will set all things right
Your hands that shaped the world are holding me...they hold me still"

How I long for Heaven and for the day when God will set all things right. Until then, I am surrounded by brokenness, death, heartache, disappointment....but I am also surrounded by the love of Christ, showered upon us through His children, blessings upon blessings, the hope and security that only Christ can bring. Our prayer continues to be that God will use our pain in our lives and in the lives of others. May He continue to be glorified.

Was glad to see this man show up with my coffee today!!! Thankful Joe is well rested and eager to take over! Love him:)