The Next Step

So I realize that I am the WORST blogger in the world! I have wanted to update for so long but I always get overwhelmed trying to catch up. I am always so encouraged by the prayers of many of you and so I am going to do by best to keep current! We have a very big month ahead and so I figured that this would be the best way to keep everyone informed.

Since the last post, we have had another 24 hour EEG with the same results, tried another seizure med with no positive results only negative side effects, the SCN1A genetic test was normal, and no spinal tap due to a hospital scheduling error.

Fast forward 6 months...Sadie has turned 4 years old! At her last IEP meeting, her teachers encouraged us to put her in full days so that she would get as much therapy as possible. We were very grateful for this provision for Sadie, yet sad at the same time that she needed this extra time...wasn't quite ready to send off my baby girl so soon. So for the last 1 1/2 months I have found myself navigating the waters of all three kids being at school all day. It has been nice to have a much needed break and time to rest! Sadie is doing wonderful at school and seems to be making improvements. She continues to wake every night and we are still trying to find the right medicine combination that will help calm the "electrical firestorm" that is going on in her brain when she sleeps. Sadie's development  is pretty much the same, though the teachers feel that she is making progress.

We go tomorrow for an MRI at UAB. They will put Sadie to sleep in order to do the MRI. We will meet with Dr. Mathisen after the test to get the results. The last MRI back in September 2011 was normal. A lot has transpired since that test, so we are unsure of what to expect. We will also be traveling to Cleavland Clinic in March to undergo a 3 day EEG and meet with some of the best neurologists in this field. This will be somewhat of a third opinion and really the final step in exhausting our options.

Many of you have asked how you can pray...I am hoping to use this blog to better update and ask for specific prayer requests.
you can join us in praying: that Sadie would tolerate the anesthesia well tomorrow, that the Lord would prepare us for the results, continued wisdom for the doctor treating Sadie, perseverance for our family as we travel this road.